thanks for working your buns off

Last year right at this very moment I was in the ICU still hooked up to a monitor and recovering. On the way home this afternoon from St. George, Miss Lynda one of the most amazing nurses ever, texted me saying she was thinking about me and my family and hoping everyone was doing well. I am over my head, grateful for those nurses and doctors that worked their buns off for me and never blink when times got really hard and even harder.
We went down to St. George to see Gma and enjoy some sunshine. Saturday morning we went on a hike close by Gma's house. As Steve and I was looking around and enjoying the view right in front of us, we thought why had we ever left this place? It was so good to "go home" for us both this weekend.

There is a lot weighting on my annual check up. Let me list them for you.

1. Eliquis my blood thinner if I can get off of it
2. If I can get my eggs harvested if I am going to be still on eliquis
3. If we can now begin our surrogacy process
4. If I can fly to Florida and Kansas to see my family
5. If we can move away if we are getting the itch
6. And there might be more coming into my mind this next week

I am nervous and kind of excited to see how well my donor's heart is doing. I hope that I come out with flying colors.

Comments

Chalk It Up as a Miracle.........

Some of you may know, but Ashley went through another Heart Transplant yesterday. After her first first new heart started to fail, we re-listed on the her on the transplant list immediately. We knew getting another heart would be a long shot, but we wanted the option to be there if a heart came available. Sure enough 18 hours on the list a second heart came available that was a perfect match for Ashley. Ironically, it took 4.5 months and then 2 hearts in the same week. We, including the doctors, are all chalking it up as a miracle. It was decided not to wait to see if the first heart would handle the load she would need but rather to move forward with the new donor heart. Going through a transplant a second time makes you really feel for the family who lost their daughter, sister, spouse and friend. We are grateful again for the family and the individual who choose to give life. We were in quite a predicament and feel only divine intervention could hav...

Stinking INR

Another day in this lovely hospital because my stinking INR will not get were in needs to be. INR means International Normalized Ratio, its a number that describes your bloods clotting factor. Doctors want my INR to be around 2.0 but I am stuck at 1.5, a normal person should be below 1.0. So the higher the INR the thinner the blood. Because I have an LVAD they are very picky about my INR because they don't want a clot to form in my LVAD. But, if my INR gets too high I bleed, so it's a fine line we are walking until I get my new heart. On a higher note, my mom and I did some crafts.... getting ready for Christmas and my baby boy Wrigley came and visited me, some of you are thinking Wrigley is a terrible child's name but he is actually my French Bulldog :)

New Day, New Chapter, New....????

After the other days SHOCKing experience, I had to go into the clinic today to have my device interrogated. Basically find out why I got shocked…. Was it warranted?? My device is set to SHOCK me if my heart gets beating too fast, like 180bpm or higher. Which I guess I excreted myself too much yesterday. This is a little bit upsetting, I was hardly up the trail and I got shocked. How am I supposed to do anything physical and not get shocked? Think about trying to exercise but also having to worry about a horse kicking you in the chest at any time. Leaving the clinic I was pretty bummed… Is my heart just getting worse? Anyway, I went to work at straws and about an hour into work the clinic was calling me. I didn’t want to answer because I had a feeling my INR would be too low again and I would have to be admitted to the hospital. Anyway, I answered and Dr. Kia was on the line. He said “I heard you left upset from the clinic today?” I figured he was about to give me a pe...

Heart4Ash (Skwig)

Search This Blog