Heart4Ash (Skwig)

This Thanksgiving holiday I felt more grateful than ever before. I didn't do anything special. I spent the day with my family. Thinking about last years Thanksgiving, I was in the hospital and my family brought me turkey and potatoes. What we went through this past year is crazy, but if you would ask me if I could do it all over again I would tell you, YES! Not sure what my husband or family would say.  I am so blessed that I received one heart on March 10th and another one on the 15th. There are so many people waiting for donors to save their lives. I received two donors within a week. Whenever I am sitting or lying and I hear my heart beating, I thank my donor and their family for saying yes to organ donation. I believe that I am still here to share my story and to inspire other's that are struggling. I never wanted to say this because I thought it was weird to say, but I full heartedly feel that way. I haven't really been telling what I have been feeling here and there.

Today at my appointment I got pretty much yelled at. I told them that I missed 3 doses, not all in a row. I missed 2 evening doses and 1 morning about 2 weeks ago. One of the doctors that I call my dad doctor, because he is a very strict and what he says goes. He told me that transplant patient ages 30 and younger usually pass because of not taking pills. I mean I knew how important my pills were because someone commented to never miss a dose. Also, he told me that rejection can happen within hours, HOURS!!!  By that time I was crying. He continues ... If my prograf  level is low, then I am going to have to come back before the  holiday to get a biopsy through the neck to check rejection. You know me, I would rather not go back in the hospital, especially if I am the reason why. My level came back at 10.8, they want me in between 8-10. I thought for sure I would be low,  because my last two blood draws were low. Dad doc was mad at me for not going to pick up the change in prograf  the

One day late, but always better late than never, huh? Alrighty folks this week was a pretty monumental because I am now 8 months ... craziness to actually think that.  I feel normal like I told all ya'll  last post I'm now back playing soccer, working my bum off at work, running when its not that cold outside. My mom and I are going to run a 5k on Thanksgiving day rather than a half marathon, but trust me, I am going to run one before my 1 year mark...promise. I feel like once I begin and over that first hill and I get my breath under control I feel like I could run for like 3 miles. Given that there aren't any major hills and I am running a 12 min mile. Afterward I feel so thankful and so good. It is so great that I am able to do these things again and I have to give it all to my donor and her family. About my prograf  level this week again I was low a little bit higher than last time, but I am going in tomorrow morning to see my docs and get my alomap done. They wante

Hey guys! Sorry about me not posting. I'm in a new house and my schedule is coming back to normal, I know another excuse but very sorry. This week what a week it has been. My work is going alright. I say alright because I am not that busy and I feel like I could be doing something more important. Sometimes it gets really awkward to and I'm not that great at awkward moments and I feel like they don't really need me there. Any ways I am hoping this week will be better. Alright, so I got my blood check on the 10th and my prograf  level was way low. My docs called and we played a little phone tag, but I finally got a hold of them. I think I already told ya  this. So I'm going to get my blood re-checked on the 18th. Heres some good news, so I can't carry my own kids. Steve and I have talked about adoption and surrogacy casually, but now we have someone that has offered and I mean there has been a few people that we know and some are in our family. This person is none o

Wow, totally forgot it post what the heck is going on with my life. Well, let me tell ya  about it. It has been pretty good. We just got our stove and couch the other day, so our home is much more homey. This past weekend we were helping my sister in law move into our basement. So after me being sick, I am nice and healthy now. I had another clinic appointment with the docs. They told me my progaf  was a little high, so they lowered that and got my blood check yesterday, Tuesday and they called me today to tell me its to low. I think I know why ... I forgot to take my pills muurrrr ... . Love taking my pills. NOT!! I know they keep me alive, but come on I can miss a day maybe 2. My white blood cells are back to normal too. :) So, about the half marathon. I haven't really been training. I know I know I stink, but guess what. I have been taking my dog Wrigley out for walks and he speed walks so that means I have to keep up with him. My fitbit  monitors my heart rate and every tim

Hope everyone had a fun and safe Halloween weekend. Pretty laid back week for me because I haven't been exercising because of my stupid cough. I tried to workout on Tuesday night. I felt fine while I was dancing my buns off and squatting. My legs were feeling it for sure. It was hilarious. I suck at dancing, but so does my friend, so we were in the back row trying to stay up with the instructor. That night I was hacking my lungs up big time. So I decided maybe another week without exercising. Now what am I going to do about the half marathon? Not sure yet. Depends how well I do on my first run back. I was thinking I was planning on running/walking 13.1 miles that day anyways, even if it takes me half the day. Just want to finish. This week we have been moving in to our new home. Exhausting and annoying if you ask me. We are staying there tonight :) so very happy! We still need to do something's but we will be alright. Wrigley isn't so sure of the house and I think he mis