Skip to main content

busted BIG time

Today at my appointment I got pretty much yelled at. I told them that I missed 3 doses, not all in a row. I missed 2 evening doses and 1 morning about 2 weeks ago. One of the doctors that I call my dad doctor, because he is a very strict and what he says goes. He told me that transplant patient ages 30 and younger usually pass because of not taking pills. I mean I knew how important my pills were because someone commented to never miss a dose. Also, he told me that rejection can happen within hours, HOURS!!!  By that time I was crying. He continues...If my prograf level is low, then I am going to have to come back before the  holiday to get a biopsy through the neck to check rejection. You know me, I would rather not go back in the hospital, especially if I am the reason why. My level came back at 10.8, they want me in between 8-10. I thought for sure I would be low,  because my last two blood draws were low. Dad doc was mad at me for not going to pick up the change in prograf the first time that my levels were low. That is when we went to St. George, he told me that I should off not gone. From now on, knowing what I know now I am going to not miss any doses and I am going to put a reminder on my phone very 12 hours. Now that I have had all day to roll over what happened this morning I have become more humble and gratified for my life. I mean I could of killed over while I was playing soccer, on one of my runs, at work working with a patient or just at home. Now that I am able to do all these things there is no way that it's going to be taken away from me again. This made me think...we are in charge of ourselves, we can have doctors, parents or someone we look up to telling us what to do, but we are the one with all the power. So, if it's pills to take every 12 hours or go for a run/walk that the person is telling you. I would just buck up and do it.

Happy Turkey Day be grateful for the small simple things and don't eat too much.

Comments

Post a Comment

Popular posts from this blog

Chalk It Up as a Miracle.........

Some of you may know, but Ashley went through another Heart Transplant yesterday. After her first first new heart started to fail, we re-listed on the her on the transplant list immediately. We knew getting another heart would be a long shot, but we wanted the option to be there if a heart came available. Sure enough 18 hours on the list a second heart came available that was a perfect match for Ashley. Ironically, it took 4.5 months and then 2 hearts in the same week. We, including the doctors, are all chalking it up as a miracle. It was decided not to wait to see if the first heart would handle the load she would need but rather to move forward with the new donor heart. Going through a transplant a second time makes you really feel for the family who lost their daughter, sister, spouse and friend. We are grateful again for the family and the individual who choose to give life. We were in quite a predicament and feel only divine intervention could hav...
7 comments
Read more

Stinking INR

Another day in this lovely hospital because my stinking INR will not get were in needs to be. INR means International Normalized Ratio, its a number that describes your bloods clotting factor. Doctors want my INR to be around 2.0 but I am stuck at 1.5, a normal person should be below 1.0. So the higher the INR the thinner the blood. Because I have an LVAD they are very picky about my INR because they don't want a clot to form in my LVAD. But, if my INR gets too high I bleed, so it's a fine line we are walking until I get my new heart. On a higher note, my mom and I did some crafts.... getting ready for Christmas and my baby boy Wrigley came and visited me, some of you are thinking Wrigley is a terrible child's name but he is actually my French Bulldog :)
5 comments
Read more

New Day, New Chapter, New....????

After the other days SHOCKing experience, I had to go into the clinic today to have my device interrogated.   Basically find out why I got shocked…. Was it warranted?? My device is set to SHOCK me if my heart gets beating too fast, like 180bpm or higher. Which I guess I excreted myself too much yesterday. This is a little bit upsetting, I was hardly up the trail and I got shocked. How am I supposed to do anything physical and not get shocked? Think about trying to exercise but also having to worry about a horse kicking you in the chest at any time.   Leaving the clinic I was pretty bummed… Is my heart just getting worse? Anyway, I went to work at straws and about an hour into work the clinic was calling me. I didn’t want to answer because I had a feeling my INR would be too low again and I would have to be admitted to the hospital. Anyway, I answered and Dr. Kia was on the line. He said “I heard you left upset from the clinic today?” I figured he was about to give me a pe...
5 comments
Read more