Skip to main content

busted BIG time

Today at my appointment I got pretty much yelled at. I told them that I missed 3 doses, not all in a row. I missed 2 evening doses and 1 morning about 2 weeks ago. One of the doctors that I call my dad doctor, because he is a very strict and what he says goes. He told me that transplant patient ages 30 and younger usually pass because of not taking pills. I mean I knew how important my pills were because someone commented to never miss a dose. Also, he told me that rejection can happen within hours, HOURS!!!  By that time I was crying. He continues...If my prograf level is low, then I am going to have to come back before the  holiday to get a biopsy through the neck to check rejection. You know me, I would rather not go back in the hospital, especially if I am the reason why. My level came back at 10.8, they want me in between 8-10. I thought for sure I would be low,  because my last two blood draws were low. Dad doc was mad at me for not going to pick up the change in prograf the first time that my levels were low. That is when we went to St. George, he told me that I should off not gone. From now on, knowing what I know now I am going to not miss any doses and I am going to put a reminder on my phone very 12 hours. Now that I have had all day to roll over what happened this morning I have become more humble and gratified for my life. I mean I could of killed over while I was playing soccer, on one of my runs, at work working with a patient or just at home. Now that I am able to do all these things there is no way that it's going to be taken away from me again. This made me think...we are in charge of ourselves, we can have doctors, parents or someone we look up to telling us what to do, but we are the one with all the power. So, if it's pills to take every 12 hours or go for a run/walk that the person is telling you. I would just buck up and do it.

Happy Turkey Day be grateful for the small simple things and don't eat too much.

Comments

Popular posts from this blog

Chalk It Up as a Miracle.........

Some of you may know, but Ashley went through another Heart Transplant yesterday. After her first first new heart started to fail, we re-listed on the her on the transplant list immediately. We knew getting another heart would be a long shot, but we wanted the option to be there if a heart came available. Sure enough 18 hours on the list a second heart came available that was a perfect match for Ashley. Ironically, it took 4.5 months and then 2 hearts in the same week. We, including the doctors, are all chalking it up as a miracle. It was decided not to wait to see if the first heart would handle the load she would need but rather to move forward with the new donor heart. Going through a transplant a second time makes you really feel for the family who lost their daughter, sister, spouse and friend. We are grateful again for the family and the individual who choose to give life. We were in quite a predicament and feel only divine intervention could have provided a means out. Ashley is

Stinking Breathing Tube!!!! Actually they are out!!! YAYA

Anywho the stinking breathing tube is still in, which makes it more than miserable for Ashley. She is so frustrated, can't talk, can't get anyone to understand what she is trying to say.  It's difficult to see her suffer like she has. The Dr. just told us it's not all just up to her, her lungs may just be that full of fluid that the oxygen saturation may just be low. They have gotten lots of fluid off her which is helping and we are hoping later today will be the day. It's going to take getting that out to  get her up walking and making leaps and bounds of improvements. We are calling today day 2 post surgery, she was on bypass through the weekend which did not put her ahead any, she had fluid on board already from the first surgery so now the fluid has basically compounded. 8PM Update- Breathing tubes are out, still on oxygen, much less irritated, she has one of her favorite nurses on tonight and we think another one of her fav's  will be working with her

quarantine = self reflection

I was talking with my lovely mother on Facetime this morning and she suggested to post on my blog. I look at my blog and noticed I haven't posted since November! So here you go, during this crazy time I am no longer working and my day to day tasks have shifted drastically. I am sure all of you know what is going on all over the world. I hope all of you are staying safe and healthy. I have been in this situation before. I was taken out of the game due to my heart, my life was soccer. Now my life was going to work and heading off to soccer practice, but COVID-19 has taken that away. I am reflecting on my response when my heart wasn't doing that well. At first I was frustrated and asking why? Now I am doing the same thing. WHY? Because I am HUMAN I know!!! This time I caught myself and decided to choose another route.  My alternate route has been getting outside every darn day, no matter the weather and enjoying the beauties of this earth, sun, clouds, rain, breeze, nature, the s