los siento amigos

One day late, but always better late than never, huh? Alrighty folks this week was a pretty monumental because I am now 8 months...craziness to actually think that. I feel normal like I told all ya'll last post I'm now back playing soccer, working my bum off at work, running when its not that cold outside. My mom and I are going to run a 5k on Thanksgiving day rather than a half marathon, but trust me, I am going to run one before my 1 year mark...promise. I feel like once I begin and over that first hill and I get my breath under control I feel like I could run for like 3 miles. Given that there aren't any major hills and I am running a 12 min mile. Afterward I feel so thankful and so good. It is so great that I am able to do these things again and I have to give it all to my donor and her family.
About my prograf level this week again I was low a little bit higher than last time, but I am going in tomorrow morning to see my docs and get my alomap done. They wanted me to take a half of a prograf, but its a capsule pill and you can't half them and I didn't got to Target to get my pills. We went to St. George to visit Gma this past weekend and to see a family friend get married in Las Vegas. Miss living in St.G the air quality there is amazing to here around this time of year.

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Chalk It Up as a Miracle.........

Some of you may know, but Ashley went through another Heart Transplant yesterday. After her first first new heart started to fail, we re-listed on the her on the transplant list immediately. We knew getting another heart would be a long shot, but we wanted the option to be there if a heart came available. Sure enough 18 hours on the list a second heart came available that was a perfect match for Ashley. Ironically, it took 4.5 months and then 2 hearts in the same week. We, including the doctors, are all chalking it up as a miracle. It was decided not to wait to see if the first heart would handle the load she would need but rather to move forward with the new donor heart. Going through a transplant a second time makes you really feel for the family who lost their daughter, sister, spouse and friend. We are grateful again for the family and the individual who choose to give life. We were in quite a predicament and feel only divine intervention could hav...

Stinking INR

Another day in this lovely hospital because my stinking INR will not get were in needs to be. INR means International Normalized Ratio, its a number that describes your bloods clotting factor. Doctors want my INR to be around 2.0 but I am stuck at 1.5, a normal person should be below 1.0. So the higher the INR the thinner the blood. Because I have an LVAD they are very picky about my INR because they don't want a clot to form in my LVAD. But, if my INR gets too high I bleed, so it's a fine line we are walking until I get my new heart. On a higher note, my mom and I did some crafts.... getting ready for Christmas and my baby boy Wrigley came and visited me, some of you are thinking Wrigley is a terrible child's name but he is actually my French Bulldog :)

New Day, New Chapter, New....????

After the other days SHOCKing experience, I had to go into the clinic today to have my device interrogated. Basically find out why I got shocked…. Was it warranted?? My device is set to SHOCK me if my heart gets beating too fast, like 180bpm or higher. Which I guess I excreted myself too much yesterday. This is a little bit upsetting, I was hardly up the trail and I got shocked. How am I supposed to do anything physical and not get shocked? Think about trying to exercise but also having to worry about a horse kicking you in the chest at any time. Leaving the clinic I was pretty bummed… Is my heart just getting worse? Anyway, I went to work at straws and about an hour into work the clinic was calling me. I didn’t want to answer because I had a feeling my INR would be too low again and I would have to be admitted to the hospital. Anyway, I answered and Dr. Kia was on the line. He said “I heard you left upset from the clinic today?” I figured he was about to give me a pe...

Heart4Ash (Skwig)

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