Wow these past few days has been "two thumbs up status" for me. Mother's day was a nice relaxing day spent with my mama of course. Truly don't know where I would be without her by my side keeping me in check. Thanks MAMA!
Monday morning I had my 6th biopsy and all that other stuff too. My results were great, biopsy was 1.00 mild rejection, blood work came back great and my echo looked good. The doctors decrease my dosage of my prograf to 2 pills morning and evening and my prednisone down to 17.5 mg, this is the drug that makes my face puffy so hallelujah!
Today I went to go see the dermatologist to check out my bald spot on my head, because my hair is non existent there. Right when he saw it he said it was alopeica and injected the spot with some steroid stuff and he said it should grow back. So we shall see. After that I drove to IHC for this Heart Failure and Transplant support group meeting, this is a group of LVAD and heart transplant patients. I have only been to one of these meetings, but this time the meeting was on Honoring Victor's memories through sharing his story. Victor's wife was the one who shared his amazing and remarkable story. Victor was the 8th person in Utah to receive an LVAD back then it wasn't even FDA approved and it was this huge shopping cart thing nothing like little ol' Gus, than he had some other medical complications. He was in ICU for 3 months!!! He finally got a heart that gave him 20 years of life. He passed on August 8th 2014. I thought it was so inspiring to hear her side of the story as the primary care giver. What she had to go through the ups and downs, what my family had to go through. It made me realize that my life isn't that bad, I mean its not normal but sometimes normal is boring. Right now I want to be normal, but now after today I am so glad I am who I am. All these experience we handle throughout our lives mold us into what we are and I am thankful for all of my experiences. I wouldn't say I have enjoyed all of them but hey I am liking my molding action :) I am so grateful for all the people I have met and interacted with over these 7 months. Hearing their stories of the good times and the bad. Makes me feel like I am not alone in this, there are others out there that have had the same struggles and victories as me.
Monday morning I had my 6th biopsy and all that other stuff too. My results were great, biopsy was 1.00 mild rejection, blood work came back great and my echo looked good. The doctors decrease my dosage of my prograf to 2 pills morning and evening and my prednisone down to 17.5 mg, this is the drug that makes my face puffy so hallelujah!
Today I went to go see the dermatologist to check out my bald spot on my head, because my hair is non existent there. Right when he saw it he said it was alopeica and injected the spot with some steroid stuff and he said it should grow back. So we shall see. After that I drove to IHC for this Heart Failure and Transplant support group meeting, this is a group of LVAD and heart transplant patients. I have only been to one of these meetings, but this time the meeting was on Honoring Victor's memories through sharing his story. Victor's wife was the one who shared his amazing and remarkable story. Victor was the 8th person in Utah to receive an LVAD back then it wasn't even FDA approved and it was this huge shopping cart thing nothing like little ol' Gus, than he had some other medical complications. He was in ICU for 3 months!!! He finally got a heart that gave him 20 years of life. He passed on August 8th 2014. I thought it was so inspiring to hear her side of the story as the primary care giver. What she had to go through the ups and downs, what my family had to go through. It made me realize that my life isn't that bad, I mean its not normal but sometimes normal is boring. Right now I want to be normal, but now after today I am so glad I am who I am. All these experience we handle throughout our lives mold us into what we are and I am thankful for all of my experiences. I wouldn't say I have enjoyed all of them but hey I am liking my molding action :) I am so grateful for all the people I have met and interacted with over these 7 months. Hearing their stories of the good times and the bad. Makes me feel like I am not alone in this, there are others out there that have had the same struggles and victories as me.
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