I want to go RUNNING...

Another successful clinic visit goes down in the books today. My blood work came back great. Hematocrit - 36, White blood cells - 14, kidneys are functioning well and my prograf is at 16 (they want me in between 12-16). I have been feeling great. My energy level is also increasing, which I like a lot!! I feel like a kid again. I want to go to the park and play on the playground and swing on the swings, go ride my dad's townie (bike) around, go screw around with a soccer ball and freaking RUN!!! I haven't been able to run for a long distance for 5 years now and all I want to do is go for a nice easy jog. Next Monday I have another biopsy and echocardiogram. I also have a clinic visit with my surgeon to clear me to do weights and hopefully RUN!
Every single day is a blessing and I am so very grateful to the donor families and again I am sorry for your loss. Thank you again for your support and I feel all your prayers. You guys are the greatest ever.

Ashley Paige Irvin doing what she does on good ol' Twisters back in the glory days :) Wait a sec, my glory days are still ahead...

Comments

Chalk It Up as a Miracle.........

Some of you may know, but Ashley went through another Heart Transplant yesterday. After her first first new heart started to fail, we re-listed on the her on the transplant list immediately. We knew getting another heart would be a long shot, but we wanted the option to be there if a heart came available. Sure enough 18 hours on the list a second heart came available that was a perfect match for Ashley. Ironically, it took 4.5 months and then 2 hearts in the same week. We, including the doctors, are all chalking it up as a miracle. It was decided not to wait to see if the first heart would handle the load she would need but rather to move forward with the new donor heart. Going through a transplant a second time makes you really feel for the family who lost their daughter, sister, spouse and friend. We are grateful again for the family and the individual who choose to give life. We were in quite a predicament and feel only divine intervention could hav...

Stinking INR

Another day in this lovely hospital because my stinking INR will not get were in needs to be. INR means International Normalized Ratio, its a number that describes your bloods clotting factor. Doctors want my INR to be around 2.0 but I am stuck at 1.5, a normal person should be below 1.0. So the higher the INR the thinner the blood. Because I have an LVAD they are very picky about my INR because they don't want a clot to form in my LVAD. But, if my INR gets too high I bleed, so it's a fine line we are walking until I get my new heart. On a higher note, my mom and I did some crafts.... getting ready for Christmas and my baby boy Wrigley came and visited me, some of you are thinking Wrigley is a terrible child's name but he is actually my French Bulldog :)

New Day, New Chapter, New....????

After the other days SHOCKing experience, I had to go into the clinic today to have my device interrogated. Basically find out why I got shocked…. Was it warranted?? My device is set to SHOCK me if my heart gets beating too fast, like 180bpm or higher. Which I guess I excreted myself too much yesterday. This is a little bit upsetting, I was hardly up the trail and I got shocked. How am I supposed to do anything physical and not get shocked? Think about trying to exercise but also having to worry about a horse kicking you in the chest at any time. Leaving the clinic I was pretty bummed… Is my heart just getting worse? Anyway, I went to work at straws and about an hour into work the clinic was calling me. I didn’t want to answer because I had a feeling my INR would be too low again and I would have to be admitted to the hospital. Anyway, I answered and Dr. Kia was on the line. He said “I heard you left upset from the clinic today?” I figured he was about to give me a pe...

Heart4Ash (Skwig)

Search This Blog