keep on keeping on

This past week was tough, but I am over my sickness. I saw my doctors on Tuesday and told them what the plan is potentially with our surrogate, so everyone is on the same page. All my blood work came back good as usual and hope that it keeps coming back good.
Wednesday night I had a indoor soccer game, Thursday I went to the gym and rode the bike, Friday after work I did a leg workout and Saturday morning I woke up legs kinda sore went for a run and worked on our yard. Our yard is looking pretty spiffy by the way. After I was spent, it blows my mind how being sick can affect our bodies. My doctors did explain to me to expect to be sick for a week longer than normal or more because of the immunosuppressant's I am on. I am so used to be able to go right back to what I normally do after being sick back in the day. Now I have to remember that I am borrowing this heart and I am feeling amazing except for being sick :) I think sometimes I am back in college playing soccer. It is crazy how much my mindset has changed over the past 2 years. I might be repeating myself, but since I received this gift of life I thought I would be a table tennis player for the rest of my life. Now I feel like I can do about anything, but obviously not I just have to try. There are no word to express my feeling of being here and what I just said is what makes me realize that I can't do everything and that is fine by me, because who cares. I just want to be the best I can possibly be. God will always love me for whoever I am, but since He has given me some more time here on this earth I feel like I owe Him to be the best I can become.

"Keep trying. Keep trusting. Keep believing. Keep growing. Heaven is cheering you on today, tomorrow and forever" -Jeffrey R. Holland

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Chalk It Up as a Miracle.........

Some of you may know, but Ashley went through another Heart Transplant yesterday. After her first first new heart started to fail, we re-listed on the her on the transplant list immediately. We knew getting another heart would be a long shot, but we wanted the option to be there if a heart came available. Sure enough 18 hours on the list a second heart came available that was a perfect match for Ashley. Ironically, it took 4.5 months and then 2 hearts in the same week. We, including the doctors, are all chalking it up as a miracle. It was decided not to wait to see if the first heart would handle the load she would need but rather to move forward with the new donor heart. Going through a transplant a second time makes you really feel for the family who lost their daughter, sister, spouse and friend. We are grateful again for the family and the individual who choose to give life. We were in quite a predicament and feel only divine intervention could hav...

Stinking INR

Another day in this lovely hospital because my stinking INR will not get were in needs to be. INR means International Normalized Ratio, its a number that describes your bloods clotting factor. Doctors want my INR to be around 2.0 but I am stuck at 1.5, a normal person should be below 1.0. So the higher the INR the thinner the blood. Because I have an LVAD they are very picky about my INR because they don't want a clot to form in my LVAD. But, if my INR gets too high I bleed, so it's a fine line we are walking until I get my new heart. On a higher note, my mom and I did some crafts.... getting ready for Christmas and my baby boy Wrigley came and visited me, some of you are thinking Wrigley is a terrible child's name but he is actually my French Bulldog :)

New Day, New Chapter, New....????

After the other days SHOCKing experience, I had to go into the clinic today to have my device interrogated. Basically find out why I got shocked…. Was it warranted?? My device is set to SHOCK me if my heart gets beating too fast, like 180bpm or higher. Which I guess I excreted myself too much yesterday. This is a little bit upsetting, I was hardly up the trail and I got shocked. How am I supposed to do anything physical and not get shocked? Think about trying to exercise but also having to worry about a horse kicking you in the chest at any time. Leaving the clinic I was pretty bummed… Is my heart just getting worse? Anyway, I went to work at straws and about an hour into work the clinic was calling me. I didn’t want to answer because I had a feeling my INR would be too low again and I would have to be admitted to the hospital. Anyway, I answered and Dr. Kia was on the line. He said “I heard you left upset from the clinic today?” I figured he was about to give me a pe...

Heart4Ash (Skwig)

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