Skip to main content

my best friend and sister

Oh my gosh! As I was reading my scriptures I was thinking about my day and I almost went to bed before posting. Well, it was a good week. Work is picking up so I am happy about that. I love to stay busy to a point. One day I was thinking to myself and how blessed I am for everything I have received on this beautiful earth. My parents, brother, husband, wrigley, my bestest friends, 3 hearts I have had, my LVAD team, my doctors, my donors, a job, a house and the list goes on and on. Sometimes I miss that life. I don't miss the hospital trust me. I miss waking up and taking my time making breakfast, going to the gym, getting ready, going for a walk with wrig on my own time during the day. Now I'm waking up early enough to hit the gym, make breakfast and lunch, get ready and I am off to work. I know I am overly grateful for my job. I absolutely love it, there is just sometimes when I wish I could go back. I wouldn't last long though. Because, yesterday I went to the gym and ran 6 miles on the treadmill. HATE treadmills awful. Steve went to help my dad, so after I was done with the gym, I took a shower and made myself some eggs. I turned on the tv and I was chillin. I lasted 2 hours by myself and I was bugging Steve.
I had a clinic visit with the doctors and I have been a good girl about my pills. I changed my mindset. I am borrowing this heart so I need to take real good care of it so I can give it back to my donor. I talked with my doctors about harvesting my eggs and surrogacy. They told me I have to wait til March to do anything. I explain to them I understand I just wanted to know if it is a possibility and if so it takes a long time to get the ball rolling. I mean we have to be in counseling for a whole year with the surrogate mother. This stuff isn't a joke. They informed me that they don't know how harvesting my eggs who impact me and if my anti-rejection drugs are affecting them. They are going to get back with me on that. I hope this is a possibility, oh my you don't know how my world would change if I had a little rugrat. I am getting chills just thinking about it. All my blood tests came back great. I have another alomap and echo in 3 weeks. My ticker is doing amazing.
I got another letter from my donor father and this time he sent me a picture of his daughter, my donor. At first I was nervous to open it. The reason why he sent it is because I told him that I thought of his daughter as my best friend and sister. As I was reading his letter I was going to the next page and there she was. I didn't cry, I looked at her and started to think about how she was feeling when she took the picture. Her father hasn't told me just a little bit about her. My mind is racing and I had to put it down. This was on Friday, on Saturday as I was running and dead tried I thought this is for you (my donor). My whole body got chills as I was running. This is why I am doing this half marathon. I am doing it for my donor, because without her I wouldn't be able to.

Comments

Post a Comment

Popular posts from this blog

Chalk It Up as a Miracle.........

Some of you may know, but Ashley went through another Heart Transplant yesterday. After her first first new heart started to fail, we re-listed on the her on the transplant list immediately. We knew getting another heart would be a long shot, but we wanted the option to be there if a heart came available. Sure enough 18 hours on the list a second heart came available that was a perfect match for Ashley. Ironically, it took 4.5 months and then 2 hearts in the same week. We, including the doctors, are all chalking it up as a miracle. It was decided not to wait to see if the first heart would handle the load she would need but rather to move forward with the new donor heart. Going through a transplant a second time makes you really feel for the family who lost their daughter, sister, spouse and friend. We are grateful again for the family and the individual who choose to give life. We were in quite a predicament and feel only divine intervention could hav...
7 comments
Read more

Stinking INR

Another day in this lovely hospital because my stinking INR will not get were in needs to be. INR means International Normalized Ratio, its a number that describes your bloods clotting factor. Doctors want my INR to be around 2.0 but I am stuck at 1.5, a normal person should be below 1.0. So the higher the INR the thinner the blood. Because I have an LVAD they are very picky about my INR because they don't want a clot to form in my LVAD. But, if my INR gets too high I bleed, so it's a fine line we are walking until I get my new heart. On a higher note, my mom and I did some crafts.... getting ready for Christmas and my baby boy Wrigley came and visited me, some of you are thinking Wrigley is a terrible child's name but he is actually my French Bulldog :)
5 comments
Read more

New Day, New Chapter, New....????

After the other days SHOCKing experience, I had to go into the clinic today to have my device interrogated.   Basically find out why I got shocked…. Was it warranted?? My device is set to SHOCK me if my heart gets beating too fast, like 180bpm or higher. Which I guess I excreted myself too much yesterday. This is a little bit upsetting, I was hardly up the trail and I got shocked. How am I supposed to do anything physical and not get shocked? Think about trying to exercise but also having to worry about a horse kicking you in the chest at any time.   Leaving the clinic I was pretty bummed… Is my heart just getting worse? Anyway, I went to work at straws and about an hour into work the clinic was calling me. I didn’t want to answer because I had a feeling my INR would be too low again and I would have to be admitted to the hospital. Anyway, I answered and Dr. Kia was on the line. He said “I heard you left upset from the clinic today?” I figured he was about to give me a pe...
5 comments
Read more