Skip to main content

special gift

Well, hey there! I have been slacking just a wee bit, my bad. I had a biopsy and echo this morning and I just got the results and everything is looking gooood! My docs told me I can go down on my prednisone (the steroid that makes my face look like the moon) to 15 mg daily so I am super pumped about that. They say I should be off the prednisone in October! Whoot Whoot!
Last week Steve's family came into town. It was great to see everyone because we hardly ever get all together because his family lives everywhere...literally. His brother is in Florida, parents are in Kanas City and GMA is in St George, but we have his sister in Farmington so thats great nice and they are the bestest. It was Steve's Birthday too, so we got to celebrate his big 29!! Listen to this... for Steve's birthday, we were getting ready to go to dinner and he was rushing me to hurry up and I was like, "Okay I'm coming, why are you so eagered to go?" We get into the car and off we go and then he is not going to the restuarant, more like total wrong way. I simply ask him, "Where are we going?'" He answers, "Getting you a Fitbit charge HR" "What no way!!" He amazes me every single day. On his birthday he is not even thinking of himself. He is the most selfless person I know. Truly an amazing example for me, because its all about me on my birthday :)
Today on the way to the doctors I was thinking how when I used to have Gus I dreaded waking up in the morning, seriously though I wish the night was longer then daytime. Now I wish the sun never when down because I been feeling increible. My energy, appetite, and life is just great. My mom and I went on a 25 mile bike ride on Saturday on the tandem bike. I was tired, but not exhausted after. This coming Satuday we are going to go try to go ride Little Red, which is an all womens ride up in Logan. We are going to shot for the 50 miler, so wish us luck. It feels so great now that I have a heart that I can actually test if that make sense. I got a letter from the father of the daughters heart thats in me now. When I was reading it I had chills all over my body, truly there are absolutely no words how to express what I was feeling. I am so blessed. Everyone says I am a miracle and I always say nah, but now I think what they are saying is true. I am still here for some reason. Not sure what that reason is, maybe to share my story who knows. All I know is that everyone has there own special gifts to give no matter how simple your gift is don't hog it all to yourself, share it. Trust me sometimes it might be hard, but the more you share your gifts you begin to feel the love and happiness it brings to your soul.


little scooter riding in Midway with my love.

Comments

Popular posts from this blog

Chalk It Up as a Miracle.........

Some of you may know, but Ashley went through another Heart Transplant yesterday. After her first first new heart started to fail, we re-listed on the her on the transplant list immediately. We knew getting another heart would be a long shot, but we wanted the option to be there if a heart came available. Sure enough 18 hours on the list a second heart came available that was a perfect match for Ashley. Ironically, it took 4.5 months and then 2 hearts in the same week. We, including the doctors, are all chalking it up as a miracle. It was decided not to wait to see if the first heart would handle the load she would need but rather to move forward with the new donor heart. Going through a transplant a second time makes you really feel for the family who lost their daughter, sister, spouse and friend. We are grateful again for the family and the individual who choose to give life. We were in quite a predicament and feel only divine intervention could hav...

Stinking INR

Another day in this lovely hospital because my stinking INR will not get were in needs to be. INR means International Normalized Ratio, its a number that describes your bloods clotting factor. Doctors want my INR to be around 2.0 but I am stuck at 1.5, a normal person should be below 1.0. So the higher the INR the thinner the blood. Because I have an LVAD they are very picky about my INR because they don't want a clot to form in my LVAD. But, if my INR gets too high I bleed, so it's a fine line we are walking until I get my new heart. On a higher note, my mom and I did some crafts.... getting ready for Christmas and my baby boy Wrigley came and visited me, some of you are thinking Wrigley is a terrible child's name but he is actually my French Bulldog :)

New Day, New Chapter, New....????

After the other days SHOCKing experience, I had to go into the clinic today to have my device interrogated.   Basically find out why I got shocked…. Was it warranted?? My device is set to SHOCK me if my heart gets beating too fast, like 180bpm or higher. Which I guess I excreted myself too much yesterday. This is a little bit upsetting, I was hardly up the trail and I got shocked. How am I supposed to do anything physical and not get shocked? Think about trying to exercise but also having to worry about a horse kicking you in the chest at any time.   Leaving the clinic I was pretty bummed… Is my heart just getting worse? Anyway, I went to work at straws and about an hour into work the clinic was calling me. I didn’t want to answer because I had a feeling my INR would be too low again and I would have to be admitted to the hospital. Anyway, I answered and Dr. Kia was on the line. He said “I heard you left upset from the clinic today?” I figured he was about to give me a pe...