Well, hey there! I have been slacking just a wee bit, my bad. I had a biopsy and echo this morning and I just got the results and everything is looking gooood ! My docs told me I can go down on my prednisone (the steroid that makes my face look like the moon) to 15 mg daily so I am super pumped about that. They say I should be off the prednisone in October! Whoot Whoot!
Last week Steve's family came into town. It was great to see everyone because we hardly ever get all together because his family lives everywhere...literally. His brother is in Florida, parents are in Kanas City and GMA is in St George, but we have his sister in Farmington so thats great nice and they are the bestest. It was Steve's Birthday too, so we got to celebrate his big 29!! Listen to this... for Steve's birthday, we were getting ready to go to dinner and he was rushing me to hurry up and I was like, "Okay I'm coming, why are you so eagered to go?" We get into the car and off we go and then he is not going to the restuarant, more like total wrong way. I simply ask him, "Where are we going?'" He answers, "Getting you a Fitbit charge HR" "What no way!!" He amazes me every single day. On his birthday he is not even thinking of himself. He is the most selfless person I know. Truly an amazing example for me, because its all about me on my birthday :)
Today on the way to the doctors I was thinking how when I used to have Gus I dreaded waking up in the morning, seriously though I wish the night was longer then daytime. Now I wish the sun never when down because I been feeling increible. My energy, appetite, and life is just great. My mom and I went on a 25 mile bike ride on Saturday on the tandem bike. I was tired, but not exhausted after. This coming Satuday we are going to go try to go ride Little Red, which is an all womens ride up in Logan. We are going to shot for the 50 miler, so wish us luck. It feels so great now that I have a heart that I can actually test if that make sense. I got a letter from the father of the daughters heart thats in me now. When I was reading it I had chills all over my body, truly there are absolutely no words how to express what I was feeling. I am so blessed. Everyone says I am a miracle and I always say nah, but now I think what they are saying is true. I am still here for some reason. Not sure what that reason is, maybe to share my story who knows. All I know is that everyone has there own special gifts to give no matter how simple your gift is don't hog it all to yourself, share it. Trust me sometimes it might be hard, but the more you share your gifts you begin to feel the love and happiness it brings to your soul.
Last week Steve's family came into town. It was great to see everyone because we hardly ever get all together because his family lives everywhere...literally. His brother is in Florida, parents are in Kanas City and GMA is in St George, but we have his sister in Farmington so thats great nice and they are the bestest. It was Steve's Birthday too, so we got to celebrate his big 29!! Listen to this... for Steve's birthday, we were getting ready to go to dinner and he was rushing me to hurry up and I was like, "Okay I'm coming, why are you so eagered to go?" We get into the car and off we go and then he is not going to the restuarant, more like total wrong way. I simply ask him, "Where are we going?'" He answers, "Getting you a Fitbit charge HR" "What no way!!" He amazes me every single day. On his birthday he is not even thinking of himself. He is the most selfless person I know. Truly an amazing example for me, because its all about me on my birthday :)
Today on the way to the doctors I was thinking how when I used to have Gus I dreaded waking up in the morning, seriously though I wish the night was longer then daytime. Now I wish the sun never when down because I been feeling increible. My energy, appetite, and life is just great. My mom and I went on a 25 mile bike ride on Saturday on the tandem bike. I was tired, but not exhausted after. This coming Satuday we are going to go try to go ride Little Red, which is an all womens ride up in Logan. We are going to shot for the 50 miler, so wish us luck. It feels so great now that I have a heart that I can actually test if that make sense. I got a letter from the father of the daughters heart thats in me now. When I was reading it I had chills all over my body, truly there are absolutely no words how to express what I was feeling. I am so blessed. Everyone says I am a miracle and I always say nah, but now I think what they are saying is true. I am still here for some reason. Not sure what that reason is, maybe to share my story who knows. All I know is that everyone has there own special gifts to give no matter how simple your gift is don't hog it all to yourself, share it. Trust me sometimes it might be hard, but the more you share your gifts you begin to feel the love and happiness it brings to your soul.
little scooter riding in Midway with my love.
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