Skip to main content

oopsies

In the middle of this past week I thought to myself, "Did you post on your blog last Sunday?" I hurried and check and I did not. I am so sorry, but like I have always said we are all human and forget things when life gets a little too busy and crazy. Last Sunday we were heading back from St George from visiting Steve's grandma. She had shoulder surgery and she is 93 years old. I know she is one wise, stubborn, loving and one sexy young lady. As we were down there she kept saying this surgery has taken all my energy. I tried to tell her that before the surgery, but she was all in. She is doing great for her young body and is still the best grandma in the west. On the way home a good friend invited us over to have shakes with another family and then after saying yes to her my mom texted me and ask if we wanted to go over to eat dinner with them. So...this is why it slipped my mind.
Two weeks ago we went to see Dr. Snell a psyhchologist for our screening. I was nervous all day long. I didn't know what is was going to ask or if she was going to see myself and then Steve, I had no clue. I had never been to a psychologist, so I was going off the shows I have watched. Steve met me there and to add to my nerves we couldn't find her office and it was ticking closer to the time we needed to be there at. We ended up finding it and once I saw her my nerves when down a wee bit, but when she said to follow her back into her office my nerves were doing jumping jack in fast forward. As we started to talk and I saw that Steve seemed fine, I began to chill out. All my worries were for nothing. All the questions she asked weren't as bad as I was expecting them to be. So all the shows I have seen were nothing at all like what I just experienced.
Tuesday of this past week I had a doctors appointment just for a check up. All my blood work came back great and they lowered my dosage of prograf, one of my immunosuppressant drugs because I am soo far out my transplant. Now that I have been experiencing all the amazing little things since my gift of life; having a new heart is incredible. I remember that I struggled going up and down stairs with a basket full of laundry before my LVAD "Gus" and my gifts of life. To think back on all those small things my heart feels overwhelmed with gratitude.
Next week my mom and I are riding in the Wildflower Pedalfest. We have been training together and it feels so good to be using a man powered bike rather than battery and to top it off  to be out there with my mom right beside me. Yesterday Steve, my mom and I rode about 22 miles together as I was riding I felt free with the wind in my face and just cruising right along with my better half and my mom. That night we had our surrogate and family come over to my parents house for dinner. They have two little ones that are adorable. Watching them parent is something that I am so excited to do and I told my surrogate I am going to have to take notes. Their kids were very obedient, listened and their eyes could give you a look and you had no choice to give in. It was so nice getting to sit down with everyone and make sure everyone knew that our relationship is open and to not hesitate to ask any question to anyone. It is truly so amazing what the doctors can do these days and especially the people that are willing to give up  a year or more of their lives for someone like Steve and I.


Our new lights and wood siding in our backyard

Comments

Popular posts from this blog

Chalk It Up as a Miracle.........

Some of you may know, but Ashley went through another Heart Transplant yesterday. After her first first new heart started to fail, we re-listed on the her on the transplant list immediately. We knew getting another heart would be a long shot, but we wanted the option to be there if a heart came available. Sure enough 18 hours on the list a second heart came available that was a perfect match for Ashley. Ironically, it took 4.5 months and then 2 hearts in the same week. We, including the doctors, are all chalking it up as a miracle. It was decided not to wait to see if the first heart would handle the load she would need but rather to move forward with the new donor heart. Going through a transplant a second time makes you really feel for the family who lost their daughter, sister, spouse and friend. We are grateful again for the family and the individual who choose to give life. We were in quite a predicament and feel only divine intervention could hav...

Stinking INR

Another day in this lovely hospital because my stinking INR will not get were in needs to be. INR means International Normalized Ratio, its a number that describes your bloods clotting factor. Doctors want my INR to be around 2.0 but I am stuck at 1.5, a normal person should be below 1.0. So the higher the INR the thinner the blood. Because I have an LVAD they are very picky about my INR because they don't want a clot to form in my LVAD. But, if my INR gets too high I bleed, so it's a fine line we are walking until I get my new heart. On a higher note, my mom and I did some crafts.... getting ready for Christmas and my baby boy Wrigley came and visited me, some of you are thinking Wrigley is a terrible child's name but he is actually my French Bulldog :)

New Day, New Chapter, New....????

After the other days SHOCKing experience, I had to go into the clinic today to have my device interrogated.   Basically find out why I got shocked…. Was it warranted?? My device is set to SHOCK me if my heart gets beating too fast, like 180bpm or higher. Which I guess I excreted myself too much yesterday. This is a little bit upsetting, I was hardly up the trail and I got shocked. How am I supposed to do anything physical and not get shocked? Think about trying to exercise but also having to worry about a horse kicking you in the chest at any time.   Leaving the clinic I was pretty bummed… Is my heart just getting worse? Anyway, I went to work at straws and about an hour into work the clinic was calling me. I didn’t want to answer because I had a feeling my INR would be too low again and I would have to be admitted to the hospital. Anyway, I answered and Dr. Kia was on the line. He said “I heard you left upset from the clinic today?” I figured he was about to give me a pe...