Skip to main content

all worth it

I am so happy that the seasons are changing. I love to have the warmth of the sun beat on my very sunscreen face :) I am getting pretty nervous about my annual testing. I feel wonderful, but I remind myself why I am feeling so good? Because I am borrowing an amazing heart from your outstanding donor. Then my nerves calm back down, because it is so worth all the pins of needles, all the clinc visits, the stays in the hospitals, the weakness of my body, the beatiful scars and soooo much more :)

As I was singing this beautiful hymn today. A light bulb came on in my head...."With hands now pledged to do thy work, we take the sacrament." God knows that there are going to be times in our life's that we are tempted to do evil but if we have, "courage to accept thy will" and "to listen and obey" Him. Then "our hearts are full. We'll walk thy chosen way." We are all human beings, we understood that we would become tempted and tried in our life time. And also that there was going to be trails throw at us in all types at any given moment, but as long as we always chose God we shall never stray our path. I always thought to myself, this is tough work to try and be like God always throughout day to day life, especially when something is really bothering you and you don't want to think of anything else except that one thing, but you obviously can't. And then you get angry and now here comes a bomb to about to exposed soon. This is me every week, sometime there are small explosions and others are quite large ones. If I partake of the sacrament each week and renew our covenant, I am good to go. This was a major relief for me because I am far from normal.

Comments

  1. AnonymousMarch 7, 2016 at 10:08 AM

    love this ash- I just spent the morning reading and rereading your posts! So proud of you and and where you are ( here...and more) Anyway- Wanted to say how much we love you and are so happy that Steve brought you into our family. We are sooo lucky. You are a great example to us all and we need to strive harder and your comments and story inspire me! LOVE YA!!!

    ReplyDelete
  2. AnonymousMarch 7, 2016 at 10:09 AM

    and it was GREAT to see you guys Friday night... Crzy

    ReplyDelete

Post a Comment

Popular posts from this blog

Chalk It Up as a Miracle.........

Some of you may know, but Ashley went through another Heart Transplant yesterday. After her first first new heart started to fail, we re-listed on the her on the transplant list immediately. We knew getting another heart would be a long shot, but we wanted the option to be there if a heart came available. Sure enough 18 hours on the list a second heart came available that was a perfect match for Ashley. Ironically, it took 4.5 months and then 2 hearts in the same week. We, including the doctors, are all chalking it up as a miracle. It was decided not to wait to see if the first heart would handle the load she would need but rather to move forward with the new donor heart. Going through a transplant a second time makes you really feel for the family who lost their daughter, sister, spouse and friend. We are grateful again for the family and the individual who choose to give life. We were in quite a predicament and feel only divine intervention could have provided a means out. Ashley is
8 comments
Read more

Stinking Breathing Tube!!!! Actually they are out!!! YAYA

Anywho the stinking breathing tube is still in, which makes it more than miserable for Ashley. She is so frustrated, can't talk, can't get anyone to understand what she is trying to say.  It's difficult to see her suffer like she has. The Dr. just told us it's not all just up to her, her lungs may just be that full of fluid that the oxygen saturation may just be low. They have gotten lots of fluid off her which is helping and we are hoping later today will be the day. It's going to take getting that out to  get her up walking and making leaps and bounds of improvements. We are calling today day 2 post surgery, she was on bypass through the weekend which did not put her ahead any, she had fluid on board already from the first surgery so now the fluid has basically compounded. 8PM Update- Breathing tubes are out, still on oxygen, much less irritated, she has one of her favorite nurses on tonight and we think another one of her fav's  will be working with her
2 comments
Read more

Stinking INR

Another day in this lovely hospital because my stinking INR will not get were in needs to be. INR means International Normalized Ratio, its a number that describes your bloods clotting factor. Doctors want my INR to be around 2.0 but I am stuck at 1.5, a normal person should be below 1.0. So the higher the INR the thinner the blood. Because I have an LVAD they are very picky about my INR because they don't want a clot to form in my LVAD. But, if my INR gets too high I bleed, so it's a fine line we are walking until I get my new heart. On a higher note, my mom and I did some crafts.... getting ready for Christmas and my baby boy Wrigley came and visited me, some of you are thinking Wrigley is a terrible child's name but he is actually my French Bulldog :)
5 comments
Read more