Skip to main content

great week!

I had a pretty nice week. I love my job. The people I work with are two thumbs up amazing and I feel comfortable asking them dumb questions, because I always have a lot of those kind of questions. I leave work smiling and saying to myself, "I really like working there."
On Thursday I had another clinic appointment and everything is looking good! My blood work came back all good. They lower my dose of predisone!! Only taking 10 mg now a total of 2 pills. This past week I have been struggling on my runs. Us lovely women have these things every single month and I was on it this week, so that's what the doc said about why I was struggling this week and my predisone medication can affect my muscles too I guess. Can't wait to see how I feel when I am totally off it.
This Friday we went up to Midway and visited our friends. They have 2 kids and wow they make me baby hungry. We went to the Heber Fair with Addi their daughter and she is the cutest, smartest, funniest little girl. It is so fun to see their faces when they get excited and see them laugh. Steve hates fairs and he didn't even complain, pretty impressive. I can't wait to have my own little hoodlums running around crazy!
I am so thankful for a day of rest to cherish the spiritual side of life and to know that He loves each of you with all His heart. Here is a quote from Jeffrey R. Holland, "In the gospel of Jesus Christ you have help from both sides of the veil, and you must never forget that." If we could see everything we would be able to see there would be horses and chariots of fire going crazy when we are in trouble.



Comments

Popular posts from this blog

Chalk It Up as a Miracle.........

Some of you may know, but Ashley went through another Heart Transplant yesterday. After her first first new heart started to fail, we re-listed on the her on the transplant list immediately. We knew getting another heart would be a long shot, but we wanted the option to be there if a heart came available. Sure enough 18 hours on the list a second heart came available that was a perfect match for Ashley. Ironically, it took 4.5 months and then 2 hearts in the same week. We, including the doctors, are all chalking it up as a miracle. It was decided not to wait to see if the first heart would handle the load she would need but rather to move forward with the new donor heart. Going through a transplant a second time makes you really feel for the family who lost their daughter, sister, spouse and friend. We are grateful again for the family and the individual who choose to give life. We were in quite a predicament and feel only divine intervention could have provided a means out. Ashley is

Stinking INR

Another day in this lovely hospital because my stinking INR will not get were in needs to be. INR means International Normalized Ratio, its a number that describes your bloods clotting factor. Doctors want my INR to be around 2.0 but I am stuck at 1.5, a normal person should be below 1.0. So the higher the INR the thinner the blood. Because I have an LVAD they are very picky about my INR because they don't want a clot to form in my LVAD. But, if my INR gets too high I bleed, so it's a fine line we are walking until I get my new heart. On a higher note, my mom and I did some crafts.... getting ready for Christmas and my baby boy Wrigley came and visited me, some of you are thinking Wrigley is a terrible child's name but he is actually my French Bulldog :)

Stinking Breathing Tube!!!! Actually they are out!!! YAYA

Anywho the stinking breathing tube is still in, which makes it more than miserable for Ashley. She is so frustrated, can't talk, can't get anyone to understand what she is trying to say.  It's difficult to see her suffer like she has. The Dr. just told us it's not all just up to her, her lungs may just be that full of fluid that the oxygen saturation may just be low. They have gotten lots of fluid off her which is helping and we are hoping later today will be the day. It's going to take getting that out to  get her up walking and making leaps and bounds of improvements. We are calling today day 2 post surgery, she was on bypass through the weekend which did not put her ahead any, she had fluid on board already from the first surgery so now the fluid has basically compounded. 8PM Update- Breathing tubes are out, still on oxygen, much less irritated, she has one of her favorite nurses on tonight and we think another one of her fav's  will be working with her